Global Down Syndrome

14 28 20 22 FEATURES MORE 18 8 $23M FOR DOWN SYNDROME! The Global Down Syndrome Foundation's hard-fought lobbying results in a substantial increase in NIH funding. 14 THE SALAH FOUNDATION: A BRAVE FAMILY MAKING A HUGE DIFFERENCE Thanks to the Salah Family and The Salah Foundation, Global will open a state-of-the-art Education Center of Excellence. 22 A DECADE OF DEVOTION As Global's 10th anniversary approaches, learn how music icon Quincy Jones catalyzed the marquee Be Beautiful Be Yourself Fashion Show and created his namesake award. 12 THE MOST COMMON CONGENITAL HEART DEFECTS IN DOWN SYNDROME Find out what parents need to know about the most common congenital heart defects in children with Down syndrome. 18 A MOM CREATES A LEGACY FOR HER SON After Ethan Saylor died at the hands of local policeman, his mother, Patti Saylor, develops major law enforcement reform. 20 AN UNEXPECTED JOURNEY The Levin family has been thrown their share of curve balls. Learn how Sam, one of their triplets, has been the family's rock. 28 ZACK GOTTSAGEN'S BREAKOUT ROLE Gottsagen, an actor who happens to have Down syndrome, wows audiences and his co-stars, Shia LaBeouf and Dakota Johnson, in The Peanut Butter Falcon. 6 REPS. CLARK AND HERRERA BEUTLER: WORKING FOR SELF-ADVOCATES AND FAMILIES 7 DOWN SYNDROME ASSOCIATION OF NORTHERN VIRGINIA "These children, they're not broken. They don't need to be fixed. They just need to be understood and nurtured. That's all." — Quincy Jones 2018 ISSUE 3 OF 4 • DOWN SYNDROME WORLD ™ 2

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