Global Down Syndrome

2019 Issue 1 of 4

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Have an event you'd like to see on our calendar? Send event details, including time and date, location, a short description, and contact or registration information to letters@downsyndromeworld.org. JUNE 2 » STEP UP FOR DOWN SYNDROME The Down Syndrome Association of Greater St. Louis will host its 10th annual awareness walk/ run and family festival. The event supports the organization's programs and services for individuals with Down syndrome and their families. St. Louis, MO dsagsl.org JUNE 6–9 » T21RS INTERNATIONAL CONFERENCE The Trisomy 21 Research Society, co-founded by Global, is organizing its third biennial conference, which attracts scientists, medical professionals, and Down syndrome experts from around the world. Renowned speakers will present the newest scientific findings and outline future directions. Barcelona, ES t21rs.org JUNE 8 » SCIENCE & SOCIETY SYMPOSIUM FOR FAMILIES: ADVOCACY, AWARENESS & FUNDRAISING Join actor Megan Bomgaars from the Emmy Award- winning series Born this Way for an inspirational morning that also features Global's President and CEO as well as two scientists who have siblings with Down syndrome. Learn how individuals and organizations can raise life-changing awareness and funds for Down syndrome research and medical care at the Trisomy 21 Research Society conference. Barcelona, ES t21rs.org CALENDAR OF EVENTS JUNE 17–JULY 11 » SUMMER EMPLOYMENT ACADEMY The Down Syndrome Association of Greater Richmond's Summer Employment Academy summer camp provides employment skills training and on-site career experience opportunities for high school students with Down syndrome. Richmond, VA dsagr.org JUNE 27 » GLOBAL DOWN SYNDROME FOUNDATION RESEARCH AND MEDICAL CARE ROUNDTABLE Co-organized with the National Down Syndrome Congress (NDSC) Annual Convention, which takes place June 27–30, Global's annual roundtable features distinguished scientists and clinicians who will discuss an important, new clinical trial research network specific to Down syndrome and Alzheimer's disease and the implication and potential treatments for immune system dysregulation in people with Down syndrome. Pittsburgh, PA globaldownsyndrome.org/events JUNE 27 » ADVOCACY TRAINING BOOT CAMP The NDSC and Global will co-organize the second annual Advocacy Training Boot Camp at the NDSC Annual Convention. The program is designed as an "Advocacy 101" mini-course for beginner advocates, self-advocates, and new parents looking to get involved with advocacy work supporting individuals with Down syndrome. Attendees will learn about current relevant policy topics, how to engage with their legislators, and ways to join advocacy efforts. Pittsburgh, PA globaldownsyndrome.org/events JULY 10 » CARING WITH CONGRESS The 15th Annual Caring with Congress event raises funds to support the National Down Syndrome Society Research Innovation & Discovery Fund. The fund aims to improve health outcomes, increase the quality of and access to care, and develop new therapies and treatments for all people with Down syndrome. Washington, D.C. ndss.org JULY 14–18 » ALZHEIMER'S ASSOCIATION INTERNATIONAL CONFERENCE The annual Alzheimer's Association International Conference brings international investigators, clinicians, and care providers together to share the latest study results, theories, and discoveries that will help generate breakthroughs in dementia science and Alzheimer's research. Los Angeles, CA alz.org JULY 19–22 » BEST BUDDIES LEADERSHIP CONFERENCE This annual four-day conference welcomes over 2,200 leaders, volunteers, and community advocates both with and without intellectual and developmental disabilities, to gain knowledge on how to take action in their Best Buddies chapters and bring social change to their communities. Bloomington, IN bestbuddies.org/bblc MAY 22 » ACCEPTABILITY GALA The Global Down Syndrome Foundation's annual AcceptAbility Gala raises funds for lifesaving and transformative research and medical care for children and adults with Down syndrome. Global will present its prestigious Quincy Jones Exceptional Advocacy Awards to Sen. Roy Blunt (R-MO) and Rep. Cheri Bustos (D-IL), and honor Ambassador CC Mullen with live music from multi-platinum pop ar tist Andy Grammer and the prelude trio The Ransom Notes. Washington, D.C. globaldownsyndrome.org/acceptability-gala GLOBALDOWNSYNDROME.ORG 27

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