Global Down Syndrome

Winter 2015

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FEATURES MORE DISCRIMINATION AND DOWN SYNDROME Recent international incidents illustrate a dire need for better efforts to combat misinformation about Down syndrome. 18 DS-CONNECT ® : A LIFE-CHANGING TOOL FROM THE NIH This new registry is revolutionizing the future of health care for people with Down syndrome. 28 ON THE MENU: BREAKFAST, LUNCH, AND HUGS Thanks to owner and self-advocate Tim Harris, Tim's Place restaurant is nationally recognized — and for more than what's served on diners' plates. A CHAMPION AT THE NIH Throughout her 29-year career, Dr. Yvonne Maddox has made huge strides in increasing funding and awareness for the differently-abled. 6 14 POINT/COUNTERPOINT Should parents use medications that affect the brain chemistry of children with Down syndrome to improve cognition? JOHN C. MCGINLEY'S GREATEST GIG: DAD He entertains audiences on big and small screens alike, but raising Max has proven to be the celebrated actor's best role yet. 20 DOWN SYNDROME AWARENESS GROUP OF BATON ROUGE 7 RESEARCH: SILENCING THE EXTRA 21 ST CHROMOSOME 8 INVESTIGATING INFANTILE SPASMS 12 GLOBAL DOWN SYNDROME EDUCATIONAL GRANTS 27 THE ROTELLA FAMILY'S "LITTLE KING" 30 "When I talk to parents of kids with special needs, I tell them they've been given an opportunity to do something great." — John C. McGinley WINTER2015 DOWN SYNDROME WORLD 2

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