Global Down Syndrome

Spring 2016

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FEATURES MORE 30 14 18 28 20 SPRING2016 DOWN SYNDROME WORLD 2 18 IN PURSUIT OF AFFORDABLE CARE President Barack Obama's healthcare law, the Affordable Care Act, has been in effect for almost six years. Are people who are differently-abled benefiting from its reforms? 20 THE SLUGGER AND THE STORYTELLER For outfielder Carlos González and author Marcus Sikora, pursuing their passions is a way of life — and they don't let obstacles stand in the way. 12 NAVIGATING A DUAL DIAGNOSIS A better understanding of the Down syndrome–autism connection opens doors to resources and support for children and families. 14 RORY FEEK BIDS FAREWELL After the recent passing of his partner in life and on stage, country musician Rory Feek is raising their little girl with Down syndrome, helping her realize the future her mother dreamed she'd achieve. 28 PORTRAIT OF AN ARTIST Mexico City artist Carlos Ramírez Guevara's paintings have traveled the globe — and he's become a proud role model for other artists in his community. 30 MARIA DELLAPINA'S GRAND VISION Originally, she just wanted her daughter to have glasses that fit. But now, Dellapina's Specs4Us eyewear is helping people around the world see life more clearly. "I've never seen Marcus look at a roadblock as the end of the road. He perseveres and dreams without obsessing over the obstacles." — Marcus Sikora's mother, Mardra 6 CONGRESSIONAL ADVOCATES FOR THE DOWN SYNDROME COMMUNITY 7 DOWN SYNDROME ASSOCIATION OF GREATER CINCINNATI 8 CRNIC GRANTS FUND RESEARCH FOR LEUKEMIA, AUTOIMMUNE DISORDERS, AND COGNITIVE IMPAIRMENT 27 CREATING JOBS FOR PEOPLE WITH DOWN SYNDROME

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