Issue link: https://viewer.e-digitaledition.com/i/842481
FEATURES MORE 30 20 14 18 29 18 FAMILY TIES As adults with Down syndrome are living longer, more fulfilling lives thanks to improvements in medical care, they now face decisions about what to do when their parents pass away. For many families, that means turning to brothers and sisters. 20 AMERICAN SUCCESS STORY Actor and model Jamie Brewer embraces the power of her celebrity to shatter stereotypes and be a voice for others — and counts superstar Miley Cyrus as an admirer. 12 BEING ALERT TO MENTAL HEALTH ISSUES People with Down syndrome can develop mental health conditions just as typical people do. Too often, however, these conditions are mistaken as characteristics of Down syndrome and go under- diagnosed and under-treated. 14 A FIRST STEP IN UGANDA Global has partnered with the Global Livingston Institute to better understand and serve the needs of Uganda's Down syndrome community. 29 AMBASSADOR OF HOPE Emmanuel Joseph Bishop's self- advocate presentations highlight the innate abilities and talents in people with Down syndrome. 30 AGAINST ALL ODDS For more than 20 years, pediatrician Jumana Odeh, M.D., M.P.H., has battled cultural stigmas, an indifferent healthcare system, and one of the world's most intractable political conflicts to help children in Palestine reach their potential. 6 SEN. ROY BLUNT AND SEN. PATTY MURRAY: FUNDING PROGRESS FOR DOWN SYNDROME RESEARCH 7 DOWN SYNDROME ASSOCIATION OF JACKSONVILLE 9 DR. ROGER REEVES: MOVING DOWN SYNDROME RESEARCH FORWARD 27 GLOBAL AND FAMILIES PETITION THE NIH FOR MORE RESEARCH "I enjoy everything I do. The variety of the work that I've had has shaped me into the woman I am now." — Jamie Brewer 2017 ISSUE 2 OF 4 • DOWN SYNDROME WORLD 2