Johns Hopkins All Children's Hospital

IN THE CHANGING L ANDSCAPE of health care, transparency of outcomes takes on greater and greater importance. Johns Hopkins All Children's Heart Institute transparently shares our outcomes for pediatric heart surgery, which are among the best in the nation, including for the most complex procedures. "Transparency of information about outcomes is important because variations in outcomes exist after pediatric heart surgery," says Jeffrey P. Jacobs, M.D., F.A.C.S., F.A.C.C., F.C.C.P., professor of surgery and pediatrics at Johns Hopkins University School of Medicine and chief of the division of cardiovascular surgery, and codirector of the Heart Institute. "Patients and their families have the right to know the outcomes of the treatments that they will receive. It is our professional responsibility to share this information with them in a format they can understand." Jacobs and his colleagues at the Heart Institute have developed techniques to gather and structure outcome data for greater transparency. Jacobs is chairman of e Society of oracic Surgeons Workforce on National Databases, which leads the national agenda on transparency of outcomes. Jacobs promotes transparency at Johns Hopkins All Children's, not just in the Heart Institute but across all four multidisciplinary institutes and in all areas of the hospital. "e work we've done in the Heart Institute can be used as a platform to create more robust transparency of outcomes in other institutes," Jacobs says. "e institute structure promotes close collaboration amongst clinicians in a focused area of patient care. is structure facilitates advances in patient care, research and teaching, and provides a framework for transparent sharing of information about outcomes." Advocating Transparency in Outcomes MORTALITY FOR ALL CARDIAC OPERATIONS 2.9 percent Compared to 3.3 percent reported by the Society of oracic Surgeons overall data, 2012-2015 ACH JHM OPERATIONS ACH JHM MORTALITY STS OVERALL MORTALITY COARCTATION 39 0.0% 1.3% VENTRICULAR SEPTAL DEFECT (VSD) 73 0.0% 0.6% TETRALOGY OF FALLOT (TOF) 59 1.7% 1.1% AV CANAL (AVC) 24 8.3% 3.0% ARTERIAL SWITCH OPERATION (ASO) 20 0.0% 2.7% ARTERIAL SWITCH OPERATION (ASO) AND VSD REPAIR 12 0.0% 5.3% GLENN / HEMIFONTAN 66 1.5% 2.5% FONTAN 50 0.0% 1.2% TRUNCUS 6 16.7% 9.4% NORWOOD 52 9.6% 15.7% HEART TRANSPLANT 34 2.9% 4.3% Source for all data: Spring 2016 STS Congenital Heart Surgery Database Reports BENCHMARK OPERATIONS OUTCOMES, 2012-2015 STAT Categories represent the estimated risk of mortality based on data from more than 77,000 operations, from least complex (Category 1) to most complex (Category 5). In most, Johns Hopkins All Children's Heart Institute mortality is signicantly lower than this international benchmark. STAT Category 1 STAT Category 2 STAT Category 3 STAT Category 4 STAT Category 5 RISK STRATIFIED OUTCOMES Overall Mortality for Risk Stratified Cardiac Surgical Outcomes, 2012–2015 20 15 10 5 0 Society of Thoracic Surgery John Hopkins 0.0% 0.6% 0.9% 1.8% 2.9% 2.8% 6.6% 7.5% 14.8% 19.9% 14 Johns Hopkins All Children's Hospital | HopkinsAllChildrens.org Heart Institute

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